Discussions

Mom is in Stage IV IBC

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     Hello,

    I am 30 years old and my mom was diagnosed with Inflammatory breast cancer stage IV last month May 2009.  It just happened so fast.  She had to be taken from work to an area hospital because of complications.  The thing is we never even knew she had it.  Since her brief hospital admission things have been very complicated for me and my family.  Unfortunately, the cancer is in both breasts and some has been located in her lungs.  She is wearing a bag for her pleural effusion.  She has only had two chemo treatments.  The first one caused the area under her armpit over the inflamed breast to open causing a wound there and she also has an open wound under her breast.  I never thought I would be faced with the possibility of losing my mom.  The thought is very unbearable to me.  My dad and I are here for her every need.  There is so much.  Hospital visits, chemo, and the back and forth.  I am trying my best to maintain.  I'm trying to stay positive.  I never cry around her.  I always wait until I am alone.  I have plenty of people around me for support but I need support from those in my exact situation.  I look forward to hearing from all and giving and receiving support from you.  Stay strong everyone!!

    Sincerely,

    Shana Lee in Baltimore, MD

     
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    I am so sorry.  My mom was diagnosed with IBC in Nov 2008.  We just lost her on June 6th.  While I am now not in your exact situation, I was there not so long ago.  You're not alone.

    Kate

     
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     Although it is not the same for me, my Momma suffered for years with the disease, I know how you feel.  I was, as you are, at a loss with the thought of losing my dear sweet Momma.  All I can say to you is just be there, like you are doing.  We all need that reassurance that what we are doing is the right thing.  Don't worry, you are!  Knowing that you are there for her every need will mean the world to her as I know it did for my Momma!  Sadly, my Momma passed away in October, 2007, but I do know that I do not regret one moment that I spent with her either at the hospital or at the dr's office when she was having chemo treatments.  I didn't always want to see her sick, but it meant the world to her that I and my siblings were there for her!  Maintaining is a big part of it but also her knowing that you care helps as well.  There were a few times that my Momma and I just cried together!  She was scared, I was scared, but she is your MOM, that is what counts.  I will pray for you and your family, and please know that my heart is with you!  Being a daughter to a mother who is going through is very hard!!  God Bless!

     
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    How are you doing? I wanted to pop in and give you warm and good thoughts, and a great big soggy seattle hug! 

     
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     Hi there. We found out the other day that my mom has breast cancer. We dont know how bad yet, but she is doing well now. She has had a mastectomy, and they has sceduled her for a bone scan and a cat scan. I was scared, but now i am hopefully optostimic that things will be alright. Last night my husband found out my secret. I have been hiding the fact that i have found lumps in my breasts. He got angry at me for not saying anything and not doing anything. He made me make an appointment to see the doctor. I dont want to take the imphasas off mom right now, we need to get her better, that is one of the most important things in my life right now.  These are confusing times right now. But what helps is we have a great support system, and my husand is a stave four throat cancer survior, so he has been though alot of what mom is going to go though.

     
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    My mom was diagnosed with breast cancer in June of 2007, it was a very hard thing to hear from my mom that she had cancer. When they found it is was everywhere her hips,pelvis,shoulder,lymph nodes,spine then that dec they found a brain tumor and she had gone through chemo and then radiation to her neck and breast then her brain after they found that tumor, she did okay for a while. Then they found a spot on her kidney in July of 08 she started on chemo pills. Then the cancer in her neck started to get really bad again and she started chemo in March of this year and things went down hill from there. She went in the hospital to have a feeding tube put in on may 14th and stopped breathing during surgery and they had to put her on life support they took her off a week later she did good so they moved her out of ICU and things got worse, she was seeing things and basically the cancer had just totally taken over her body it was starting in her lungs she had it in ribs,linner of her abdomen,legs,liver,kidney, breast, and real bad in her neck. My mom passed away May 30, and I had been at the hospital everyday with her. I know it is really hard I'm 31 my mom was only 57 when she passed away and before she had cancer I thought I would have her around until I was at least in my 50's. It is something that you don't want to have to face at any age. The day after she was moved from ICU she was doing good and we both go to say how much we loved each other and different things like that. I told her when she got really bad that she was the best mom I could have asked for and how much I loved her and that when she was ready it was okay for her to go be with my grandparents and that I knew God had her in his arms, she passed away 5 hours later. The one thing I can tell you is make sure you tell her everything you want her to know that doesn't mean you have to feel like your giving up hope cause you need to keep a hold of that hope but you also need to make sure that you get to communicate your feeling to her to. I will pray for you and your mom. I'm so sorry that you, your family and your mom have to go through all of this, my heart goes out to all of you.

     
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